Children With Special Health Care Needs

Administered by: Bureau of Maternal and Child Health


The University of Illinois at Chicago's Division of Specialized Care for Children (DSCC) is the Title V program for children with special healthcare needs in Illinois. DSCC guides families through their child's journey with a medical condition and works with doctors, schools and community groups to create a seamless support system. DSCC staff partners with families to address a child's medical, social, behavioral, educational and financial needs. This process is called care coordination. It is free for all children who have eligible medical conditions, regardless of their family's income level. DSCC's care coordination can include finding specialized medical care, helping families understand their child's diagnosis and medical treatment plan, explaining insurance benefits, attending school meetings and preparing for the transition to adulthood. DSCC can also help pay for eligible medical expenses, such as equipment, therapies, supplies and medical services, when families meet income guidelines.

DSCC serves Illinois children up to age 21 who have or are suspected of having a chronic condition in one of the following categories: blood disorders, cardiovascular impairments, craniofacial & external body impairments, eye impairments, gastrointestinal impairments, hearing impairments, inborn errors of metabolism, nervous system impairments, orthopedic impairments, pulmonary impairments and urogenital impairments.

DSCC also serve families who care for children and youth who require skilled in-home nursing. DSCC operates the Home Care Program on behalf of the Illinois Department of Healthcare and Family Services (HFS). Many eligible youth are also medically fragile and dependent on technology for their well-being. Home Care services help youth remain in their family home rather than a hospital or skilled nursing facility through care coordination, connection to service providers, paying for home modifications, etc. Young adults enrolled in the Medicaid Title XIX Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children may choose to remain in Home Care beyond 21 years of age.


Links

For more information: UIC Division of Specialized Care for Children