Ligas Data Report, August 19, 2020

Paragraph 33 of the Ligas Consent Decree: …Not less than every six (6) months, Defendants shall provide to the Monitor, Plaintiffs, Class Counsel, Intervenors and Intervenors' Counsel and make publicly available, a detailed report containing data and information sufficient to evaluate Defendants' compliance with the Decree and Defendants progress toward achieving compliance…

This is the fifteenth Ligas Data Report, containing data from January 1, 2020 through June 30, 2020. Per the Ligas Consent Decree, the Division of Developmental Disabilities (DDD) will produce reports of data and information regarding implementation of the provisions of the Ligas Consent Decree every six months. The due dates for these reports will typically be February 15th and August 15th of each year.

Class Member List

The DDD maintains a centralized, master Class Member list as described in the Ligas Implementation Plan. Individual records are categorized into three separate areas: individuals living at home in the community, individuals living in an ICF/DD who were admitted after June 15, 2011, and individuals living in an ICF/DD who were there on June 15, 2011 (the date of the Court's approval of the Consent Decree). Written statements documenting a desire to be a part of the class are obtained for each individual in the latter category. Individuals are added to or removed from the class list as appropriate.

FY19 FY20 as of 6/30/2020
1 Living at Home 15,215 15,969
2 ICF/DD after 6/15/11 313 322
3 ICF/DD on 6/15/11 with an Affirmative Statement to Move (2a) 1,351 1,343
3a DD PAS 10 9 9
3b DHS 1243/1238 952 947
3c EFE Form 168 166
3d OSG Request 202 201
3e Other Guardian Request 20 20
4 # At End of Fiscal Year 16,879 17, 634

Individuals were added to or removed from the Class Member List as follows:

Additions Additions in FY19 Additions in FY20
Individuals in ICFs/DD on 6/15/11 0 0
Individuals in ICF/DDs after 6/15/11 70 15
Individuals in Community Settings 1,753 1,709
Total Additions 1,823 1,724


Removals Removals in FY19 Removals In FY20
Individual Moved Out of State 104 75
Determined Clinically Ineligible 22 9
Determined Financially Ineligible 3 2
Withdrew-Reason Not Given 88 91
Individual Deceased 63 50
Objector 0 0
Other 627 518
Incorrect SSN (Duplicate Record) 4 1
Ineligible Setting 3 0
Unable to Locate Individual 290 208
Stay in ICFDD 13 4
Submitted in Error 0 0
Move to ICFDD 36 11
Total Removals 1,253 969


  • Prior Fiscal Year numbers may change from previous reports due to updates made in class member types and effective dates.  The total number of removals and additions will not reconcile to the net increase or decrease in class members due to some individuals changing class status from year to year.
  • "Other" in the above chart represents a variety of situations to include, but not limited to: individuals or family was unresponsive, signed PUNS form was not returned.

ICFs/DD Resident Outreach

Outreach to all individuals residing in ICF/DDs was required under the Decree. This was completed via a contract with CQL, which conducted Outreach during FY14, FY15 and FY16. CQL's contract ended on January 31, 2016, and no other Outreach activities were required during this reporting period.

Services for Class Members in ICFs/DD

The DDD informed ISC agencies of the confirmed class members residing in ICFs/DD as of June 15, 2011 and instructed the agencies to complete eligibility determinations and facilitate the choice and selection process. ISC agencies report to the DDD on a monthly basis progress made in assisting the individuals with their options. All previous transition benchmarks for transitions from ICF/DS were met, with the limited exception of the final benchmark of June 30, 2017, just prior to which 310 OSG wards were added to the Class. This benchmark was not fully achieved, but the DDD, OSG and the ISC Agencies worked to evaluate and transition those individuals in a timely manner.

The following chart 1 represents the number of ICF/DD Class Members approved for and/or receiving Waiver services:

Target Dates from Consent Decree: 1/1/20 - 6/30/20 Cumulative Total as of 6/30/20
1 # of Class Members with Waiver Capacity Award Letters 2 1463
2 *Total Class Members Who Have Moved to Waiver Services (per billing data) 2 1461
2a Subtotal Who Received CILA Services 2 1434
2b Subtotal Who Received HBS Services 0 24
2c Subtotal Who Received CLF Services 0 3

 Note: 1 The data includes individuals who moved/are moving due to ICF/DD downsizing and closure agreements.

Services for Class Members from the Waiting List

Nine selections have been completed from the PUNS database (the Division's waiting list) since the approval of the Consent Decree using the criteria specified in the Ligas Implementation Plan. Upon selection, Class Members are notified and the ISC agencies complete eligibility determinations and facilitate the choice and provider selection process utilizing Person Centered Planning. A set of tables is maintained that provides summary information regarding the results of the selections. These tables are available on the Division's website at

Ligas Benchmarks Total as of 6/30/20
1 # of Class Members Selected From The Waiting List (PUNS) 8,079
2 # of Class Members in ICF/DDs after 6/15/11 who were part of a downsizing 176
3 Total Class Members With Waiver Capacity Award Letters 4,871
4 Total Class Members Who Have Received Waiver Services (as reported by the PAS agencies and providers) 4,804
5 Total Class Members Who Have Received Waiver Services (per billing data) 4,736
5a *Subtotal Who Received CILA Services(per billing data) 1,125
5b *Subtotal Who Received HBS Services(per billing data) 3,604
5c *Subtotal Who Received CLF Services(per billing data) 7

Transition Service Plans

An initial version of a standardized format and accompanying instructions was developed with input from the Monitor, Plaintiff's Counsel, ISC agencies, and other advocates throughout the system and implemented during FY13. In 2018, the DDD began transitioning to a more person-centered process for Ligas Class Members. The initial phase of the person-centered planning process involves development of a Discovery Tool, which identifies what is important to and for the Class Member. The second step is the creation of the Personal Plan, which focuses on the individual's strengths, preferences, needs and desires. Finally, an Implementation Strategy is created based on the content of the Personal Plan, which identifies the services and supports needed and which the provider will implement to achieve the outcomes identified in the Personal Plan. This new process began January 1, 2018 for Ligas Class Members. All Ligas Class Members began receiving Personal Plans in lieu of the Ligas Transition Plan (either as initial plans, or annual plans) as of January 1, 2018.

Transitions to CILA by CILA Size of Home

All Persons - Currently in CILA (as of 6/30/2020)

Type of CILA 1 2 3 4 5 6 7 8 Total
24 HR 44 55 576 1,905 844 1,866 780 3,869 9,939
Family 412 53 1 14 6 1 0 4 491
Host Family 51 218 31 10 0 0 0 0 310
Intermittent 263 99 28 51 20 28 7 61 557
Total 770 425 636 1,980 870 1,895 787 3,934 11,297

Ligas Placements into CILA (from either an ICF/DD or from the PUNS list) - (as of 6/30/2020)

Type of CILA 1 2 3 4 5 6 7 8 Total
24 HR 8 9 95 499 152 252 81 880 1,976
Family 95 5 0 3 2 0 0 0 105
Host Family 6 23 1 0 0 0 0 0 30
Intermittent 32 8 0 8 2 2 1 4 57
Total 141 45 96 510 156 254 82 884 2,168

Crisis Placements (through 6/30/2020)

Type of CILA 1 2 3 4 5 6 7 8 Total
24 HR 6 11 126 264 105 227 102 494 1,335
Family 83 14 0 0 1 0 0 1 99
Host Family 10 37 3 0 0 0 0 0 50
Intermittent 50 13 0 9 0 4 1 4 81
Total 149 75 129 273 106 231 103 499 1,565

Note: Information regarding crisis placements (the number of individual as crisis placements receiving home-based support services, currently in state-operated facilities and were in CILA but terminated for various reasons) will be provided when available.

Crisis Services

The DDD continues to process service requests for individuals in crisis situations. Below is summary data regarding the requests processed.

FY19 FY20 Cumulative Total to Date
1 Total # of Crisis Requests Received 304 293 3,492
2 Total # of Class Members Approved 280 283 3,253
2a # of Class Members Approved for CILA 194 165 2,066
2b # of Class Members Approved for HBS 86 118 1,187
3 Total # of Class Members Who Received Services 277 283 3,237
3a # of Class Members who received CILA Services 193 165 2,055
3b # of Class Members Who Received HBS Services 84 118 1,182
4 Total # of Class Members Denied Crisis Approvals 24 10 239

Voluntary ICFs/DD Closure/Downsizing Agreements

The DDD continues to work with ICF/DD providers that wish to downsize or close their facilities on a voluntary basis. The information below represents ICF/DD Closures or Downsizing agreements for the current reporting period, as well as a cumulative figure since inception (FY13).

In rare instances, some individuals who are part of closure/downsizing agreements are determined to be ineligible for the Adult Developmental Disabilities Medicaid Waiver. In such instances, the individuals are funded in community-based services with only State funding and are not eligible for membership in the Ligas Class.

In comparing this data with that in the section entitled "Services for Class Members in ICFs/DD", note that the data source for whether an individual has moved is different between the two sections. This section uses self-reported information from the ICF/DD providers regarding the status of their closure/downsizing agreements; the section entitled "Services for Class Members in ICFs/DD" uses billing data. Typically, there is a greater lag time in the billing data.

FY19 FY20 Cumulative Total as of 6/30/2020
1 # of Agreements Initiated 9 5 80
2 Total # Licensed Capacity 127 164 1,593
3 Total # of People to Move 91 126 1,285
3a *Moved to CILAs 75 19 1,107
3b *Moved to HBS 0 1 1
3c * Transferred to other ICFs/DD 11 15 45
3d *Other 5 3 44
3e *Move Pending 0 88 88

Note: Numbers and outcomes are recorded in the Fiscal Year in which the agreement was initiated.


The DDD continues to process appeals of eligibility and crisis denials for services under the Adults with Developmental Disabilities Waiver. Below is summary data regarding such appeals.

FY19 FY20 Cumulative Total as of 6/30/2020
1 Total Class Members Appeals (Rows 2,3,4,5 = Row 1) 49 31 436
1a Crisis Appeals 14 3 161
1b Eligibility Appeals 34 28 275
2 Subtotal Appeals Upheld 15 5 136
3 Subtotal Appeals Denied 27 1 236
4 Subtotal Appeals Pending 1 17 18
5 Subtotal Appeals Withdrawn/Closed 6 8 46

Reasonable Pace

Pursuant to the FY19 Implementation Plan, the DDD agreed to a process by which to ensure individuals on the PUNS waiting list enter services "at a reasonable pace". In addition, the DDD agreed to ensure a minimum of 600 individuals enter services during FY20. This includes individuals selected during FY20 or any prior PUNS selection. For FY20 only, this may include individuals transitioning from one Waiver-funded service to another (i.e. HBCS to CILA). For F21-FY25, a minimum of 630 individuals will be required to enter services each year, excluding transitions from one Waiver service to another (HBCS to CILA).

PUNS Selection date Number of Selection letters sent Contact made
8/12/19 1251 1225, as of 06/30/20

Total number of individuals who entered services from any PUNS selection

# of Individuals 602

Adults on PUNS Seeking Services as of June 30, 2020

Time Waiting while Seeking Services as of June 30, 2020 Persons Est. FY for Services
Over 60 months 693 FY22
59.99 months to 48 months 1062 FY23
47.99 months to 35 months 1180 FY24
34.99 months to 24 months 1247 FY25
23.99 months to 12 months 1591 FY26
11.99 months and less 1514 Beyond FY26
Total *7287

 Note: * Includes 627 persons currently in the DD waiver. Time Waiting is based on current PUNS data and may fluctuate to some extent, except for FY25, in which Time Waiting will be no more than 60 months.

Waiver Service Transitions from AHBS to CILA

The following data represents the number of Waiver-funded individuals who transitioned from the Adult Home-Based Support (AHBS) program to the Community Integrated Living Arrangement (CILA) program for the period specified below. These service changes were a result of an individual's increased need 2 for such services, and not the result of a selection from the PUNS list.

Type of service request 1/1/19 - 6/30/19 7/1/19 - 12/31/19 1/1/20 - 6/30/20
Adult HBS to Intermittent CILA 5 2 0
Adult HBS to Family CILA 2 3 1
Adult HBS to Host Family CILA 0 0 0
Adult HBS to 24-Hour CILA 27 36 20
Adult HBS to CILA Denials 0 0 0
Adult HBS to CILA Appeals 0 0 0

Note : 2 A new process for transitions between Waiver services is in development for FY21. The new process will be in addition to the above process, for the time being.

Ligas Estimated Cost

Note: Projections updated 8/5/2020.

FY19 FY20 est.3 FY21 est.4
PUNS Placements $120,979,448 $142,148,797 $168,032,685
to CILA $47,062,776 $56,556,088 $68,221,181
to HBS $73,916,672 $85,592,709 $99,811,504
Transitions from ICF/DD's $93,917,401 $101,492,568 $112,226,255
to CILA $93,239,974 $100,812,701 $111,534,140
to HBS $677,427 $679,867 $692,115
Ind. Serv. & Supt. Adv. (ISSA) $6,232,266 $7,207,314 $8,610,922
Staffing and Contract Costs $8,315,436 $8,956,349 $9,442,149
Personal Services $1,629,774 $1,629,774 $1,629,774
Court Monitor $213,250 $243,250 $284,850
HBSS Fiscal Agent $2,677,000 $3,083,800 $3,528,000
Ind. Service Coord. (ISC) $1,370,381 $1,418,344 $1,418,344
Pre-Adm. Screen. (ISC) $2,052,431 $2,124,266 $2,124,266
PUNS Database
Family Advocacy Initiative $250,000 $250,000 $250,000
Trans. Serv. Planning (U of I)
Ligas Training $21,397 $25,000 $25,000
Total $229,444,551 $259,805,028 $298,312,011
ICF/DD Liability Change ($64,572,888) ($70,784,104) ($71,768,590)
Total Net Costs $164,871,663 $189,020,924 $226,543,421
Change from Prior Year $24,149,261 $37,522,497


3FY20 expenditures are still estimated due to the State still being in the budgetary lapse process. Actual expenditures for FY20 will be reported separately once final.

4FY21 expenditures are estimated and will continue to be through the fiscal year until the end of the FY21 budgetary lapse process. 

End of year Persons in Service FY19 FY21 FY21 est.
PUNS Placements
PUNS to CILA 840 945 1,072
PUNS to HBSS 3,140 3,662 4,166
Subtotal 3,980 4,607 5,238
Transitions from ICF/DD's
ICFDD to CILA 1,601 1,621 1,681
ICFDD to HBSS 27 27 27
Subtotal 1,628 1,648 1,708
Total (all receive ISSA) 5,608 6,255 6,946
ICF/DD Bed Reduction FY19 FY20 FY21 est.
Beds Closed in FY 44 16 28
Cumulative Beds Closed 941 957 985

Note: The above budgetary lines do not include the funding for the new FY21 waiver transitions/increased need process because this option is available to all Waiver recipients, not just Ligas Class Members. The cost for the new process in FY21 is $10 million.

Additional Budget Related Information

DD Long Term Care Service System Cost

Overall spending for the DDLTC System is described below:

FY19 FY20 FY21 est.
Cost in Millions $334.2 *$299.5 $303.8
$ Change from Prior Yr. $334.2 * ($34.7) $4.3
Average Persons 3,899 3,845 3,845
Persons Change from Prior Yr. -54 0

Source: Est. Liability per HFS Reports DHS Budget Office.

Note: MC/DD (former SNF/PEDs) were transferred to HFS effective 4/1/2019 (PA100-0646). Both funding and persons have been adjusted for FY20 and FY21.

Adult Waiver Services

Adult Waiver "Accepted Claims" is described below:

FY19 FY20
Adult Waiver Claims (millions) $838.00 data not available at time of this report
$ Change from Prior Yr. $838.00 data not available at time of this report
Unduplicated Persons 21,635 data not available at time of this report
Persons Change from Prior Yr. 21,635 data not available at time of this report

 Source: Accepted Claims Reports (Mobius)

DD CILA Waiver Services

A subset of Adult Waiver services, spending for CILA services, including residential, day and ISSA is described below:

FY19 FY20
DD CILA Services Billings (millions) $689.20 $780.20
$ Change from Prior Yr. $32.90 $91.00
Authorized CILA persons 11,406 11,364
Persons Change from Prior Yr. 47 -42

Source: Billing System & Authorized Client Report

Rates Oversight Committee/Rate Development

The Rates Oversight Committee was established in August 2018 to address concerns regarding the rate structure for CILA and ICF/DD providers. The Committee oversaw seven sub-committees on various subjects and who provided reports and recommendations to the Committee. The Final Report of the Committee was issued on November 13, 2019, and a contractor was hired to conduct a rate study and make recommendations for a revised rate methodology. DHS has extended the contract through the end of November, is making steady progress toward final recommendations and anticipate the final report, including the rate calculators, in late October/early November.

Expansion of Short-Term Stabilization Homes

The DDD previously utilized four Short-Term Stabilization Homes with a total capacity of 16 beds (4 per home) to provide temporary stabilization services to Class Members experiencing extraordinary behavioral issues preventing their continued stay in their Community-Based Setting. We entered into an agreement with the current providers to expand by two homes each (4 per home). This was delayed due to the COVID-19 pandemic. Planned opening is for end of Q2.

Implementation Plan Updates and Amendments

The original Implementation Plan was completed and filed with the Court with input from the Monitor, Plaintiffs, and Intervenors.  subsequent annual updates are completed each year. The original Implementation Plan and the subsequent updates are posted on the DHS website at:

Coronavirus 2019

In March of 2020, the Governor of Illinois issued a Stay at Home Order as a result of the Coronavirus (COVID-19). Subsequently, the Department of Human Services temporarily suspended all site-based Community Day Service attendance in effort to prevent the spread of the virus. The Data for Agency-Reported COVID-19 Positive Cases in DDD Community Integrated Living Arrangements (CILAs) is available on the Department's website at The Department of Public Health tracks statistics for Illinois at large as well as for long-term care facilities; this is available at