Ligas Data Report as of 6-30-19
August 7, 2019
Paragraph 33 of the Ligas Consent Decree: …Not less than every six (6) months, Defendants shall provide to the Monitor, Plaintiffs, Class Counsel, Intervenors and Intervenors' Counsel and make publicly available, a detailed report containing data and information sufficient to evaluate Defendants' compliance with the Decree and Defendants progress toward achieving compliance…
This is the thirteenth Ligas Data Report. Per the Ligas Consent Decree, the Division of Developmental Disabilities (DDD) will produce reports of data and information regarding implementation of the provisions of the Ligas Consent Decree every six months. The due dates for these reports will typically be February 15th and August 15th of each year.
Class Member List
The DDD is maintaining a centralized, master class list as described in the Ligas Implementation Plan. Individual records are categorized into three separate areas: individuals living at home in the community, individuals living in an ICF/DD who were admitted after June 15, 2011, and individuals living in an ICF/DD who were there on June 15, 2011 (the date of the Court's approval of the Consent Decree). Written statements documenting a desire to be a part of the class are obtained for each individual in the latter category. Individuals are added to or removed from the class list as appropriate.
|
Class Member |
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
1 |
Living at Home |
10,677 |
10,327 |
15,106 |
16,684 |
13,455 |
14,140 |
14,677 |
15,216 |
2 |
ICF/DD after 6/15/11 |
62 |
77 |
170 |
241 |
214 |
240 |
254 |
310 |
3 |
ICF/DD on 6/15/11 with an Affirmative Statement to Move (2a) |
747 |
981 |
1,177 |
1,448 |
1,318 |
1,514 |
1,377 |
1,355 |
3a |
DD PAS 10 |
12 |
9 |
9 |
10 |
9 |
9 |
9 |
9 |
3b |
DHS 1243/1238 |
291 |
585 |
792 |
1094 |
1065 |
999 |
964 |
952 |
3c |
EFE Form |
407 |
345 |
319 |
288 |
204 |
180 |
175 |
168 |
3d |
OSG Request |
23 |
22 |
22 |
21 |
17 |
305 |
209 |
206 |
3e |
Other Guardian Request |
14 |
20 |
35 |
35 |
23 |
21 |
20 |
20 |
4 |
# At End of Fiscal Year |
11,486 |
11,385 |
16,453 |
18,373 |
14,987 |
15,894 |
16,308 |
16,881 |
Individuals were added to or removed from the Class Member List as follows:
Additions |
Additions in FY13 |
Additions in FY14 |
Additions in FY15 |
Additions in FY16 |
Additions in FY17 |
Additions in FY18 |
Additions in FY19 |
Individuals in ICFs/DD on 6/15/11 |
350 |
271 |
329 |
117 |
358 |
3 |
0 |
Individuals in ICF/DDs after 6/15/11 |
17 |
97 |
75 |
36 |
36 |
43 |
68 |
Individuals in Community Settings |
48 |
5,010 |
2,179 |
2,246 |
2,036 |
1,773 |
1,753 |
Total Additions |
415 |
5,378 |
2,583 |
2,399 |
2,430 |
1,819 |
1,821 |
Removals |
Removals in FY13 |
Removals in FY14 |
Removals in FY15 |
Removals in FY16 |
Removals in FY17 |
Removals in FY18 |
Removals in FY19 |
Individual Moved Out of State |
35 |
15 |
12 |
311 |
73 |
83 |
104 |
Determined Clinically Ineligible |
18 |
20 |
8 |
56 |
23 |
29 |
22 |
Determined Financially Ineligible |
11 |
6 |
3 |
34 |
2 |
2 |
3 |
Withdrew-Reason Not Given |
132 |
106 |
90 |
450 |
120 |
109 |
88 |
Individual Deceased |
35 |
14 |
440 |
108 |
54 |
63 |
63 |
Objector |
1 |
1 |
0 |
0 |
0 |
0 |
0 |
Other |
4 |
0 |
0 |
3,406 |
932 |
712 |
627 |
Incorrect SSN (Duplicate Record) |
17 |
0 |
6 |
36 |
20 |
7 |
4 |
Ineligible Setting |
26 |
53 |
12 |
7 |
0 |
1 |
2 |
Unable to Locate Individual |
158 |
68 |
53 |
1,260 |
224 |
271 |
290 |
Stay in ICFDD |
78 |
24 |
38 |
47 |
20 |
94 |
9 |
Submitted in Error |
0 |
0 |
1 |
12 |
0 |
0 |
0 |
Move to ICFDD |
1 |
3 |
0 |
58 |
55 |
34 |
36 |
Total Removals |
516 |
310 |
663 |
5,785 |
1,523 |
1,405 |
1,248 |
Notes:
- Prior Fiscal Year numbers may change from previous reports due to updates made in class member types and effective dates. The total number of removals and additions will not reconcile to the net increase or decrease in class members due to some individuals changing class status from year to year.
- The relatively large increase in the number of removals reported as deaths during FY15 is due to an enhancement to the DDD's database which now enables the DDD to regularly and automatically identify individuals who have become deceased. This enhancement has captured reports of deaths not previously identified in the prior fiscal years.
- The reported increase in the number of removals during FY16 is due to an enhancement to the DDD's database which now enables updates to regularly and automatically identify individuals who have been closed on the PUNS waiting list. This enhancement has captured closures not previously identified in the prior fiscal years. The PUNS Integrity Project and the continued automated sweeps of PUNS are both factors in the reported reductions.
Services for Class Members in ICFs/DD
The DDD informed ISC agencies of the confirmed class members residing in ICFs/DD as of June 15, 2011 and instructed the agencies to complete eligibility determinations and facilitate the choice and selection process. ISC agencies report to the DDD on a monthly basis progress made in assisting the individuals with their options.
|
Target Dates from Consent Decree: |
12/31/13 |
12/31/15 |
12/31/17 |
12/31/19 |
Cumulative Total to Date |
1 |
# of Class Members with Waiver Capacity Award Letters |
610 |
685 |
137 |
22 |
1454 |
2 |
*Total Class Members Who Have Moved to Waiver Services (per billing data) |
598 |
682 |
149 |
22 |
1451 |
2a |
Subtotal Who Received CILA Services |
583 |
676 |
143 |
22 |
1424 |
2b |
Subtotal Who Received HBS Services |
12 |
6 |
6 |
0 |
24 |
2c |
Subtotal Who Received CLF Services |
3 |
0 |
0 |
0 |
3 |
Please note that the above data includes individuals who are moving due to ICF/DD downsizing and closure agreements.
- The 12/31/13 Benchmark is 1/3 (297) of the known ICF/DD Class Members as of 6/15/13 (889).
- The 12/31/15 Benchmark is 2/3 (923) of the known ICF/DD Class Members as of 6/15/15 (1399).
- The 06/30/17 Benchmark is all of the known ICF/DD Class Members as of 6/15/17.
Services for Class Members from the Waiting List
Eight selections have been completed from the PUNS database (the Division's waiting list) since the approval of the Consent Decree using the criteria specified in the Ligas Implementation Plan. Upon selection, Class Members are notified and the ISC agencies complete eligibility determinations and facilitate the choice and provider selection process. A set of tables is maintained that provides summary information regarding the results of the selections. These tables are available on the Division's website at PUNS Selection Data & Ligas PUNS Selection Data.
# |
Ligas Benchmarks |
Total |
1 |
# of Class Members Selected from The Waiting List (PUNS). |
6828 |
2 |
# of Class Members in ICF/DDs after 6/15/11 who were part of a downsizing |
171 |
3 |
Total Class Members with Waiver Capacity Award Letters |
4226 |
4 |
Total Class Members Who Have Received Waiver Services (as reported by the PAS agencies and providers) |
4171 |
5 |
Total Class Members Who Have Received Waiver Services (per billing data) |
4135 |
5a |
*Subtotal Who Received CILA Services (per billing data) |
1008 |
5b |
*Subtotal Who Received HBS Services (per billing data) |
3120 |
5c |
*Subtotal Who Received CLF Services (per billing data) |
7 |
ICFs/DD Resident Outreach
With input from the Monitor, Class Counsel, and Intervenors, the DDD issued a Request for Proposals (RFP) to secure the services of a contractor or multiple contractors to contact all Potential Class Members residing in ICFs/DD; however, the DDD did not receive any bids in response to the RFP. After consultation with the State's procurement staff to ensure all regulations are appropriately followed, the DDD entered discussions with a potential vendor. The vendor, The Council on Quality and Leadership (CQL), entered into a contract with the DDD to plan and develop outreach activity. CQL assigned/hired a Project Director and Project Manager. The vendor hired individuals to conduct the initial phone contact and face-to-face interviews. With input from the Monitor, Class Counsel, and Intervenors, the vendor developed an overall process description, a set of frequently asked questions with responses, a phone script for initial contacts, and meeting presentation materials. Geographic areas for the phase in of initial contact were selected. These areas were Madison and St. Clair Counties in the southern part of the State and the South and Southwest Suburbs of Cook County in the northern part of the State. CQL conducted training for the interviewers in September, with participation by DDD staff and the Monitor. An additional training session was held in January of 2014 for interviewers who were hired after the initial session. CQL initiated and completed outreach activity in all areas of the State. CQL's contract ended on January 31, 2016.
|
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
1 |
Total Potential Class Members pending contact |
|
|
2620 |
590 |
0 |
2 |
# with Initial Phone Contact |
|
|
546 |
1272 |
1625 |
3 |
# Choosing Not to Meet w/Outreach Contractor |
|
|
393 |
941 |
1281 |
4 |
# Choosing not to Meet at this time, but Want Future Contact |
|
|
29 |
32 |
0 |
5 |
Total # Choosing to Meet w/Outreach Contractor |
|
|
124 |
299 |
341 |
5a |
# Persons Completed Written Request for Community Services Through Outreach |
|
|
32 |
83 |
127 |
5b |
# Undecided |
|
|
18 |
36 |
30 |
5c |
# Pending |
|
|
13 |
46 |
0 |
5d |
# Choosing ICF/DD |
|
|
61 |
134 |
184 |
Transition Service Plans
An initial version of a standardized format and accompanying instructions was developed with input from the Monitor, Plaintiffs Counsel, ISC agencies, and other advocates throughout the system. Two ISC agencies piloted the draft process and materials with Class Members and providers in their areas. These two ISC agencies participated in a planning/training meeting with the Monitor and DDD staff on August 23, 2012 in order to begin the pilot. DDD staff and the Monitor reviewed the Transition Service Plans that were developed as the pilot was underway. Monthly conference calls were held among the two ISC agencies, Monitor, and DDD staff throughout the pilot. The standardized format and accompanying instructions were modified, based on the experience of the pilot, for Statewide implementation.
Training for all ISC agencies was held on April 16, 2013. This statewide training session was then followed with local training sessions for small groups of ISC agencies throughout the remainder of April and May. The training opportunities were conducted by DDD staff and the Monitor. Statewide implementation occurred on July 1, 2013: as of that date, Transition Service Plans are required for all individuals who move. A modified version of the Transition Service Plan has been provided for the ISC agencies for use with individuals who moved prior to statewide implementation of the Transition Service Plan format.
# |
Action |
Total Plans Completed |
1 |
# with Transition Service Plan Completed |
1915 |
2 |
# of Modified Transition Plans Completed |
434 |
3 |
Total to Date |
2349 |
Crisis Services
The DDD continues to process service requests for individuals in crisis situations. Below is summary data regarding the requests processed.
# |
Action |
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
Cumulative Total to Date |
1 |
Total # of Crisis Requests Received |
343 |
298 |
424 |
486 |
504 |
467 |
373 |
304 |
3199 |
2 |
Total # of Class Members Approved |
290 |
274 |
397 |
461 |
482 |
447 |
339 |
280 |
2970 |
2a |
# of Class Members Approved for CILA |
205 |
162 |
217 |
283 |
312 |
263 |
265 |
194 |
1901 |
2b |
# of Class Members Approved for HBS |
85 |
112 |
180 |
178 |
170 |
184 |
74 |
86 |
1069 |
3 |
Total # of Class Members Who Received Services |
288 |
269 |
397 |
460 |
479 |
447 |
337 |
277 |
2954 |
3a |
# of Class Members Who Received CILA Services |
203 |
159 |
217 |
282 |
310 |
263 |
263 |
193 |
1890 |
3b |
# of Class Members Who Received HBS Services |
85 |
110 |
180 |
178 |
169 |
184 |
74 |
84 |
1064 |
4 |
Total # of Class Members Denied Crisis Approvals |
53 |
24 |
27 |
25 |
22 |
20 |
34 |
24 |
229 |
Voluntary ICFs/DD Closure/Downsizing Agreements
The DDD continues to work with ICF/DD providers that wish to downsize or close their facilities on a voluntary basis. The information below summarizes the agreements underway since the Consent Decree was approved. Please take note of the following issues involving the data in the table below:
- Included in the FY12 numbers are persons who were part of closure/downsizing agreements that were in process at the time of the approval of the Consent Decree on June 15, 2011. Therefore, some individuals may have moved prior to that date and were not included in the Class as they already had community-based services prior to the approval of the Consent Decree.
- It is a rare occurrence, but it is possible that some individuals who are part of closure/downsizing agreements are determined to be ineligible for the Adult Developmental Disabilities Medicaid Waiver. In such instances, the individuals are funded in community-based services with only State funding and are not eligible for membership in the Ligas Class.
- In comparing this data with that in the section entitled "Services for Class Members in ICFs/DD", note that the data source for whether an individual has moved is different between the two sections. This section uses self-reported information from the ICF/DD providers regarding the status of their closure/downsizing agreements; the section entitled "Services for Class Members in ICFs/DD" uses billing data. Typically, there is a greater lag time in the billing data.
|
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
Cumulative Total to Date |
1 |
# of Agreements Initiated |
9 |
16 |
22 |
13 |
2 |
0 |
4 |
9 |
75 |
2 |
Total # Licensed Capacity |
144 |
486 |
340 |
238 |
32 |
0 |
62 |
127 |
1429 |
3 |
Total # of People to Move |
117 |
406 |
278 |
202 |
24 |
0 |
41 |
91 |
1159 |
3a |
*Moved to CILAs |
113 |
381 |
266 |
191 |
22 |
0 |
40 |
66 |
1079 |
3b |
*Moved to HBS |
0 |
0 |
0 |
0 |
0 |
0 |
0 |
0 |
0 |
3c |
*Transferred to other ICFs/DD |
4 |
3 |
8 |
4 |
0 |
0 |
0 |
11 |
30 |
3d |
*Other |
0 |
22 |
4 |
7 |
2 |
0 |
1 |
5 |
41 |
3e |
*Move Pending |
0 |
0 |
0 |
0 |
0 |
0 |
0 |
9 |
9 |
Note: Numbers and outcomes are recorded in the Fiscal Year in which the agreement was initiated.
Eligibility Appeals
The DDD continues to process appeals of eligibility. Below is summary data regarding the appeals processed since the Consent Decree was approved.
|
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
|
|
1 |
Total Class Members Submitting Appeals (Rows 2,3,4,5 = Row 1) |
57 |
56 |
38 |
56 |
51 |
41 |
57 |
46 |
402 |
1a |
Crisis Appeals |
23 |
14 |
17 |
23 |
21 |
12 |
34 |
14 |
158 |
1b |
Eligibility Appeals |
34 |
42 |
21 |
33 |
30 |
29 |
23 |
32 |
244 |
2 |
Subtotal Appeals Upheld |
13 |
30 |
13 |
17 |
21 |
9 |
13 |
13 |
129 |
3 |
Subtotal Appeals Denied |
41 |
19 |
20 |
31 |
25 |
30 |
41 |
25 |
232 |
4 |
Subtotal Appeals Pending |
0 |
0 |
0 |
0 |
0 |
0 |
0 |
4 |
4 |
5 |
Subtotal Appeals Withdrawn |
3 |
7 |
5 |
8 |
5 |
2 |
3 |
4 |
37 |
Division of Developmental Disabilities - Ligas Estimated Cost - Projection updated July 2019
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
FY20 |
PUNS Placements |
|
16,150,052 |
49,250,421 |
69,943,577 |
80,514,310 |
93,412,557 |
111,565,856 |
125,250,433 |
145,321,013 |
Comm. Integrated Living Arrangements |
|
3,350,846 |
11,930,708 |
21,908,806 |
28,448,948 |
32,964,335 |
39,690,849 |
47,900,031 |
56,394,404 |
Home Based Support Services |
|
12,799,206 |
37,319,714 |
48,034,771 |
52,065,361 |
60,448,222 |
71,875,007 |
77,350,402 |
88,926,609 |
Transitions from ICF/DD's |
|
12,418,220 |
33,454,591 |
57,002,579 |
73,771,181 |
79,600,288 |
88,598,392 |
95,575,635 |
102,705,592 |
Comm. Integrated Living Arrangements |
|
12,251,085 |
33,136,440 |
56,594,518 |
73,241,509 |
78,940,254 |
87,847,449 |
94,868,050 |
101,996,741 |
Home Based Support Services |
|
167,135 |
318,151 |
408,061 |
529,672 |
660,034 |
750,943 |
707,585 |
708,851 |
Net ICF/DD liability change From FY12 |
|
(11,864,219) |
(27,200,082) |
(50,228,487) |
(56,412,183) |
(64,081,848) |
(38,722,969) |
(41,560,166) |
(31,950,582) |
Staffing and Contract Costs |
329,550 |
2,039,176 |
5,462,564 |
7,142,693 |
8,214,437 |
6,259,766 |
7,051,466 |
8,280,736 |
8,749,234 |
Personal Services |
186,932 |
1,241,559 |
1,504,825 |
1,601,574 |
1,629,774 |
1,629,774 |
1,629,774 |
1,629,774 |
1,629,774 |
Court Monitor |
142,618 |
182,367 |
175,788 |
189,300 |
207,544 |
213,250 |
213,250 |
213,250 |
213,250 |
HBSS Fiscal Intermediary Costs |
- |
440,250 |
1,266,450 |
1,622,200 |
1,743,500 |
2,005,700 |
2,345,800 |
2,714,900 |
3,063,600 |
Independent Service Coordination (ISC) |
- |
- |
514,336 |
497,048 |
497,048 |
497,048 |
688,805 |
1,370,381 |
1,418,344 |
Pre-Admission Screening |
- |
- |
933,665 |
1,683,247 |
1,663,994 |
1,663,994 |
1,873,837 |
2,052,431 |
2,124,266 |
BIP Services on PUNS database |
- |
- |
- |
307,364 |
1,771,368 |
- |
- |
- |
- |
Outreach |
- |
175,000 |
700,000 |
721,000 |
180,250 |
- |
- |
- |
- |
Family Advocacy Initiative |
- |
- |
266,700 |
400,000 |
400,000 |
250,000 |
250,000 |
250,000 |
250,000 |
Transition Service Planning |
- |
- |
100,800 |
120,960 |
120,960 |
- |
50,000 |
50,000 |
50,000 |
Total |
329,550 |
18,743,229 |
60,967,494 |
83,860,362 |
106,087,745 |
115,190,763 |
168,492,745 |
187,546,638 |
224,825,257 |
Notes:
Rates have been adjusted for the DSP hourly increases: FY18 $0.75 (eff 8/1/2017); FY19 $0.50 (eff 7/1/2018). FY20 includes a COLA of 3.5%.
HFS has recently changed the DD LTC (i.e. ICFDD) payment and reporting to a web-based system. This has temporarily interrupted DHS access to traditional production reports, therefore ICFDD liability is subject to further adjustments at a later date.
Additional Budget Related Information
ICF/DD Service System Cost
Overall spending for the ICFDD system is described below:
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
FY20 |
Cost in Millions |
$382.8 |
$370.9 |
$355.6 |
$332.6 |
$326.4 |
$318.7 |
$344.0 |
$341.2 |
$350.8 |
Change from Prior Year |
|
$ (11.9) |
$ (15.3) |
$ (23.0) |
$ (6.2) |
$ (7.7) |
$ 25.3 |
$ (2.8) |
$9.6 |
Average Persons |
6,244 |
6,206 |
5,872 |
5,424 |
5,083 |
5,007 |
4,963 |
4,870 |
4,838 |
Change from Prior Year |
|
-38 |
-334 |
-448 |
-341 |
-76 |
-44 |
-93 |
-32 |
Change from FY12 |
|
(11.9) |
$(27.2) |
$(50.2) |
$(56.4) |
$(64.1) |
$(38.8) |
$(41.6) |
$(32.0) |
Source: Est. Liability per HFS Reports. DHS Budget Office.
Adult Waiver Services
Adult Waiver "Accepted Claims" is described below:
|
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19Est |
Adult Waiver Claims (millions) |
$553.3 |
$595.3 |
$658.3 |
$710.6 |
$748.6 |
$763.2 |
$798.4 |
$834.5 |
Change from Prior Year |
|
$42.0 |
$63.0 |
$52.3 |
$38.0 |
$14.6 |
$35.2 |
$36.1 |
Unduplicated Persons |
17,607 |
18,621 |
19,509 |
20,512 |
20,797 |
21,216 |
21,371 |
21,411 |
Change from Prior Year |
|
1,014 |
888 |
1,003 |
285 |
419 |
155 |
40 |
Source: Accepted Claims Reports (Mobius)
DD CILA Waiver Services
A subset of Adult Waiver services, spending for CILA services, including residential, day and ISSA is described below:
Ligas Estimated Cost |
FY12 |
FY13 |
FY14 |
FY15 |
FY16 |
FY17 |
FY18 |
FY19 |
DD CILA Services Billings (millions) |
$462.1 |
$498.9 |
$546.9 |
$593.5 |
$619.8 |
$624.2 |
$ 655.2 |
$698.4 |
Change from Prior Year |
|
$36.8 |
$48.0 |
$46.6 |
$26.3 |
$4.4 |
$31.0 |
$43.2 |
Unduplicated CILA Persons |
9,515 |
10,038 |
10,441 |
11,243 |
11,410 |
11,430 |
11,359 |
11,448 |
Change from Prior Year |
|
523 |
403 |
802 |
167 |
20 |
(71) |
89 |
Source: Billing System & Auth. Report - Client Type C
Transitions from AHBS to CILA
The following data represents individuals who transitioned from the Adult Home-Based Support (AHBS) program to the Community Integrated Living Arrangement (CILA) program for the period specified below. Individual's transitioned to CILA due to an increase in needs and not because of a PUNS selection. This information has been added to the 6-month report based on the Ligas Implementation Plan FY2019 Revisions.
Type of service request |
January 1 -June 30, 2019 |
Adult HBS to Intermittent CILA |
5 |
Adult HBS to Family CILA |
2 |
Adult HBS to Host Family CILA |
0 |
Adult HBS to 24-Hour CILA |
27 |
HBS to CILA Denials |
0 |
HBS to CILA Appeals |
0 |
Implementation Plan Updates and Amendments
The original Implementation Plan was completed and filed with the Court with input from the Monitor, Plaintiffs, and Intervenors. Subsequent annual updates are completed each year. The original Implementation Plan and the subsequent update are posted on the DHS website at: Ligas Implementation Plan and Plan Update.