2020 RED Report: Developmental Disabilities

Mission Statement

The Division of Developmental Disabilities (DDD) supports individuals with developmental disabilities (DD) to attain their wants, needs, and dreams through being competitively employed, making decisions, contributing to the community, ensuring health and safety, and relationships with family and friends. The Division believes in providing opportunities for those being served so they can maximize control over their life choices and achieve personal success.


The Division of Developmental Disabilities (DDD) provides an extensive array of services and supports to individuals with developmental disabilities. The developmental disability service system includes seven State Operated Developmental Centers (SODC), 328 community service providers, and approximately 218 private Intermediate Care Facilities. Additionally, DDD manages three Home and Community Based Medicaid waivers: Adult Waiver, Children's Residential Waiver, and Children's Support Waiver. While the DDD operates these programs, the Illinois Department of Healthcare and Family Services (HFS) is responsible for being the official administrator of these programs with federal Center for Medicare and Medicaid Services, which partially funds these programs. This means that HFS is responsible for collecting and holding data pertaining to service delivery. The DDD will collect demographics data annually from HFS for reporting.

Data Collection Processes

  • DDD and HFS collect data on DDD customers from the seven State Operated Developmental Centers. This represents 4% of their total customers.
  • HFS collects data on DDD customers covered by the three Home and Community Based Waivers, and customers in the private Intermediate Care Facilities. This represents 73% of their total customers.
  • HFS also collects data on DDD grant funded programs but were unable to produce the data for us in time for this report. DDD will collect this data for subsequent reports.

DDD SFY 2020 Demographic Data

  • Total Number of Programs - 12
  • Total Number of Participants - 37,961
  • Number of Participants whose Race and Ethnic Demographics are being Reported - 29,731