Ligas Data Report as of December 31, 2016

February 15, 2017

Paragraph 33 of the Ligas Consent Decree: …Not less than every six (6) months, Defendants shall provide to the Monitor, Plaintiffs, Class Counsel, Intervenors and Intervenors' Counsel and make publicly available, a detailed report containing data and information sufficient to evaluate Defendants' compliance with the Decree and Defendants progress toward achieving compliance…

This is the ninth Ligas Data Report. Per the Ligas Consent Decree, the Division of Developmental Disabilities (DDD) will produce reports of data and information regarding implementation of the provisions of the Ligas Consent Decree every six months. The due dates for these reports will typically be February 15th and August 15th of each year. Unless otherwise specified in the body of this report, the data collected for FY 2017 represents a time frame of July 1, 2016 through December 31, 2016.

Class Member List

The DDD is maintaining a centralized, master class list as described in the Ligas Implementation Plan. Individual records are categorized into three separate areas: individuals living at home in the community, individuals living in an ICF/DD who were admitted after June 15, 2011, and individuals living in an ICF/DD who were there on June 15, 2011 (the date of the Court's approval of the Consent Decree). Written statements documenting a desire to be a part of the class are obtained for each individual in the latter category. Individuals are added to or removed from the class list as appropriate.

Row Description FY12 FY13 FY14 FY15 FY16 FY17
1 Living at Home 10,691 10,309 15,083 16,660 13,428 13,795
2 ICF/DD after 6/15/11 27 41 131 221 195 212
3 ICF/DD on 6/15/11 with an Affirmative Statement To Move (2a) 695 919 1,079 1,393 1,479 1,187
3a DD PAS 10 12 9 9 10 10 9
3b DHS 1243/1238 229 520 700 1055 1174 974
3c EFE Form 432 363 331 290 262 184
3d OSG Request 7 6 5 4 1 0
3e Other Guardian Request 15 21 34 34 32 20
4 # At End of Fiscal Year 11,413 11,269 16,293 18,274 15,102 15,194

Individuals were added to or removed from the Class Member List as follows: 

Description Additions in FY13 Additions in FY14 Additions in FY15 Additions in FY16 Additions in FY17
Individuals in ICFs/DD on 6/15/11 351 243 329 120 15
Individuals in ICF/DDs after 6/15/11 16 94 70 34 22
Individuals in Community Settings 47 5,029 2,186 2,250 1,032
Total Additions 414 5,366 2,585 2,404 1,069
Removals Removals in FY13 Removals in FY14 Removals in FY15 Removals in FY16 Removals in FY17
Individual Moved Out of State 35 15 13 311 43
Determined Clinically Ineligible 18 21 8 56 10
Determined Financially Ineligible 11 6 3 34 1
Withdrew-Reason Not Given 153 124 98 443 51
Individual Deceased 35 13 450 89 25
Objector 1 1 0 0 0
Other 6 3 0 3,237 467
Incorrect SSN (Duplicate Record) 17 0 6 36 6
Ineligible Setting 26 54 13 7 0
Unable to Locate Individual 167 74 54 1,257 132
Stay in ICFDD 89 31 47 52 8
Submitted in Error 0 0 1 13 0
Move to ICFDD 0 0 0 57 39
Total Removals 558 342 693 5,592 782

Note: Prior Fiscal Year numbers may change from previous reports due to updates made in class member types and effective dates. The total number of removals and additions will not reconcile to the net increase or decrease in class members due to some individuals changing class status from year to year.

Note: The relatively large increase in the number of removals reported as deaths during FY15 is due to an enhancement to the DDD's database which now enables the DDD to regularly and automatically identify individuals who have become deceased. This enhancement has captured reports of deaths not previously identified in the prior fiscal years.

Note: The reported increase in the number of removals during FY16 is due to an enhancement to the DDD's database which now enables updates to regularly and automatically identify individuals who have been closed on the PUNS waiting list. This enhancement has captured closures not previously identified in the prior fiscal years. The PUNS Integrity Project and the continued automated sweeps of PUNS are both factors in the reported reductions.

Services for Class Members in ICFs/DD

The DDD informed ISC agencies of the confirmed class members residing in ICFs/DD as of June 15, 2011, and instructed the agencies to complete eligibility determinations and facilitate the choice and selection process. ISC agencies are now reporting to the DDD on a monthly basis progress made in assisting the individuals with their options. The DDD continues to inform the ISC agencies of new class members as they are identified.

Row Target Dates from Consent Decree: 12/31/13 12/31/15 6/30/17 Cumulative Total to Date
1 # of Class Members With Waiver Capacity Award Letters 610 684 83 1377
2 *Total Class Members Who Have Moved to Waiver Services (per billing data) 598 682 78 1358
2a Subtotal Who Received CILA Services 583 676 75 1334
2b Subtotal Who Received HBS Services 12 6 3 21
2c Subtotal Who Received CLF Services 3 0 0 3

Please note that the above data includes individuals who are moving due to ICF/DD downsizing and closure agreements.

  • The 12/31/13 Benchmark is 1/3 (297) of the known ICF/DD Class Members as of 6/15/13 (889).
  • The 12/31/15 Benchmark is 2/3 (923) of the known ICF/DD Class Members as of 6/15/15 (1399).
  • The 06/30/17 Benchmark is all of the known ICF/DD Class Members as of 6/15/17.

Services for Class Members from the Waiting List

Four selections have been completed from the PUNS database (the Division's waiting list) since the approval of the Consent Decree using the criteria specified in the Ligas Implementation Plan. The Class Members selected have been notified and the ISC agencies have been instructed to complete eligibility determinations and facilitate the choice and provider selection process. A set of tables is maintained that provides summary information regarding the results of the selections. These tables are available on the Division's website at http://www.dhs.state.il.us/page.aspx?item=41142.

Row Ligas Benchmarks Total
1 # of Class Members Selected From The Waiting List (PUNS). 5012
2 # of Class Members in ICF/DDs after 6/15/11 who were part of a downsizing 100
3 Total Class Members With Waiver Capacity Award Letters 2964
4 Total Class Members Who Have Received Waiver Services (as reported by the PAS agencies and providers) 2918
5 Total Class Members Who Have Received Waiver Services (per billing data) 2882
5a * Subtotal Who Received CILA Services(per billing data) 699
5b * Subtotal Who Received HBS Services(per billing data) 2180
5c * Subtotal Who Received CLF Services(per billing data) 3

ICFs/DD Resident Outreach

With input from the Monitor, Class Counsel, and Intervenors, the DDD issued a Request for Proposals (RFP) to secure the services of a contractor or multiple contractors to contact all Potential Class Members residing in ICFs/DD; however, the DDD did not receive any bids in response to the RFP. After consultation with the State's procurement staff to ensure all regulations are appropriately followed, the DDD entered into discussions with a potential vendor. The vendor, The Council on Quality and Leadership (CQL), is now under contract with the DDD, and planning and development activity is underway. CQL has assigned/hired a Project Director and Project Manager. The vendor has also hired individuals to conduct the initial phone contact and face-to-face interviews. With input from the Monitor, Class Counsel, and Intervenors, the vendor has developed an overall process description, a set of frequently asked questions with responses, a phone script for initial contacts, and meeting presentation materials. Geographic areas for the phase in of initial contact were selected. These areas are Madison and St. Clair Counties in the southern part of the State and the South and Southwest Suburbs of Cook County in the northern part of the State. CQL conducted training for the interviewers in September, with participation by DDD staff and the Monitor. An additional training session was held in January of 2014 for interviewers who were hired after the initial session. CQL has now initiated and completed outreach activity in all areas of the State. CQL's contract ended on January 31, 2016.

Row Description FY12 FY13 FY14 FY15 FY16 FY17
1 Total Potential Class Members pending contact 2620 590 0
2 # with Initial Phone Contact 546 1272 1625
3 # Choosing Not to Meet w/Outreach Contractor 393 941 1281
4 # Choosing not to Meet at this time, but Want Future Contact 29 32 0
5 Total # Choosing to Meet w/Outreach Contractor 124 299 341
5a # Persons Completed Written Request for Community Services Through Outreach 32 83 127
5b # Undecided 18 36 30
5c # Pending 13 46 0
5d # Choosing ICF/DD 61 134 184

Transition Service Plans

An initial version of a standardized format and accompanying instructions was developed with input from the Monitor, Plaintiffs Counsel, ISC agencies, and other advocates throughout the system. Two ISC agencies piloted the draft process and materials with Class Members and providers in their areas. These two ISC agencies participated in a planning/training meeting with the Monitor and DDD staff on August 23, 2012 in order to begin the pilot. DDD staff and the Monitor reviewed the Transition Service Plans that were developed as the pilot was underway. Monthly conference calls were held among the two ISC agencies, Monitor, and DDD staff throughout the pilot. The standardized format and accompanying instructions were modified, based on the experience of the pilot, for Statewide implementation.

Training for all ISC agencies was held on April 16, 2013. This statewide training session was then followed with local training sessions for small groups of ISC agencies throughout the remainder of April and May. The training opportunities were conducted by DDD staff and the Monitor. Statewide implementation occurred on July 1, 2013: as of that date, Transition Service Plans are required for all individuals who move. A modified version of the Transition Service Plan has been provided for the ISC agencies for use with individuals who moved prior to statewide implementation of the Transition Service Plan format.

Row Description Total Plans Completed
1 # with Transition Service Plan Completed 1766
2 # of Modified Transition Plans Completed 434
3 Total to Date 2200

Crisis Services

The DDD continues to process service requests for individuals in crisis situations. Below is summary data regarding the requests processed.

Row Description FY12 FY13 FY14 FY15 FY16 FY17 Cumulative Total to Date
1 Total # of Crisis Requests Received 343 298 424 486 504 202 2,257
2 Total # of Class Members Approved 290 274 397 461 482 193 2,097
2a # of Class Members Approved for CILA 205 162 217 283 312 116 1,295
2b # of Class Members Approved for HBS 85 112 180 178 170 77 802
3 Total # of Class Members Who Received Services 288 269 397 460 479 193 2,086
3a # of Class Members Who Received CILA Services 203 159 217 282 310 116 1,287
3b # of Class Members Who Received HBS Services 85 110 180 178 169 77 799
4 Total # of Class Members Denied Crisis Approvals 53 24 27 25 22 9 160

Voluntary ICFs/DD Closure/Downsizing Agreements

The DDD continues to work with ICF/DD providers that wish to downsize or close their facilities on a voluntary basis. The information below summarizes the agreements underway since the Consent Decree was approved. Please take note of the following issues involving the data in the table below:

  • Included in the FY12 numbers are persons who were part of closure/downsizing agreements that were in process at the time of the approval of the Consent Decree on June 15, 2011. Therefore some individuals may have moved prior to that date and were not included in the Class as they already had community-based services prior to the approval of the Consent Decree.
  • It is a rare occurrence, but it is possible that some individuals who are part of closure/downsizing agreements are determined to be ineligible for the Adult Developmental Disabilities Medicaid Waiver. In such instances, the individuals are funded in community-based services with only State funding and are not eligible for membership in the Ligas Class.
  • In comparing this data with that in the section entitled "Services for Class Members in ICFs/DD", note that the data source for whether an individual has moved is different between the two sections. This section uses self-reported information from the ICF/DD providers regarding the status of their closure/downsizing agreements; the section entitled "Services for Class Members in ICFs/DD" uses billing
Row Description FY12 FY13 FY14 FY15 FY16 FY17 Cumulative Total to Date
1 # of Agreements Initiated 9 16 22 13 2 0 62
2 Total # Licensed Capacity 144 486 340 238 32 0 1240
3 Total # of People to Move 117 406 278 202 24 0 1027
3a * Moved to CILAs 113 381 266 191 22 0 973
3b * Moved to HBS 0 0 0 0 0 0 0
3c * Transferred to Other ICFs/DD 4 3 8 4 0 0 19
3d * Other 0 22 4 7 2 0 35
3e *Move Pending 0 0 0 0 0 0 0

Note: Numbers and outcomes are recorded in the Fiscal Year in which the agreement was initiated.

Eligibility Appeals

The DDD continues to process appeals of eligibility. Below is summary data regarding the appeals processed since the Consent Decree was approved.

Row Description FY12 FY13 FY14 FY15 FY16 FY17 Cumulative Total to Date
1

Total Class Members Submitting Appeals

(Rows 2,3,4,5 = Row 1)

57 57 40 50 49 21 274
1a Crisis Appeals N/A 16 17 23 23 7 86
1b Eligibility Appeals N/A 41 23 27 26 14 131
2 Subtotal Appeals Upheld 9 22 6 18 19 7 81
3 Subtotal Appeals Denied 29 18 15 27 19 13 121
4 Subtotal Appeals Pending 0/Returned 6 17 11 13 2 6 1 50
5 Subtotal Appeals Withdrawn 2 6 6 3 5 0 22

Division of Developmental Disabilities

Ligas Estimated Cost

Projection updated 2/8/2017

FY12 FY13 FY14 FY15 FY16 FY17 Est FY18 Proj
PUNS Placements $16,122,204 $49,319,629 $70,084,427 $80,077,816 $95,381,496 $115,657,474
CILA (includes Residential, Day and ISSA) $3,344,995 $11,954,404 $21,935,206 $28,426,539 $38,165,295 $51,702,739
Home Based Support Services (includes ISSA) $12,777,209 $37,365,226 $48,149,222 $51,651,278 $57,216,202 $63,954,734
Transitions from ICF/DD's $655,355 $6,297,592 $6,783,692 $21,448,735 $24,501,390 $30,662,412
CILA (includes Residential, Day and ISSA) $12,309,942 $33,108,736 $56,501,672 $77,244,651 $87,050,129 $98,427,821
Home Based Support Services (includes ISSA) $218,778 $399,089 $489,691 $576,989 $620,149 $620,127
Net ICF/DD Change -$11,873,366 -$27,210,233 -$50,207,670 -$56,372,906 -$63,168,888 -$68,385,536
Staffing and Contract Costs $ 329,550 $ 2,039,176 $ 5,465,264 $ 7,144,893 $ 8,230,244 $ 6,346,066 $ 6,570,466
Court Monitor $ 142,618 $ 182,367 $ 175,788 $ 189,300 $ 223,250 $ 223,250 $ 223,250
Personal Services $ 186,932 $ 1,239,834 $ 1,504,825 $ 1,601,574 $ 1,629,774 $ 1,629,774 $ 1,629,774
HBSS Fiscal Intermediary Costs $ - $ 441,975 $ 1,269,150 $ 1,624,400 $ 1,743,600 $ 1,932,000 $ 2,156,400
PAS/ISC for Assessments & Transitional
Service Plans $ - $ - $ 1,448,001 $ 2,180,295 $ 2,161,042 $ 2,161,042 $ 2,161,042
PUNS Integrity Project $ - $ - $ - $ 307,364 $ 1,771,368 $ - $ -
Outreach Contract (Council on
Quality/Leadership) $ - $ 175,000 $ 700,000 $ 721,000 $ 180,250 $ - $ -
Other Consulting $ - $ - $ 367,500 $ 520,960 $ 520,960 $ 400,000 $ 400,000
Total $329,550 $18,816,735 $61,082,485 $84,013,013 $109,756,794 $126,228,952 $152,890,351

Additional Budget Related Information 

ICFDD Service System Cost 

Overall spending for the ICFDD system is described below:

FY12 FY13 FY14 FY15 FY16 FY17 Est FY18 Proj
Cost in Millions 382.8 370.9 355.6 332.6 326.4 319.6 314.4
Change from Prior Year -11.9 -15.3 -23.0 -6.2 -6.8 -5.2
Average Persons 6,244 6,136 5,702 5,184 4,984 4,833 4,764
Change from Prior Year (108) (434) (518) (200) (151) (69)
Source: Est. Liability per HFS Reports. DHS Budget Office.

Adult Waiver Services

Adult Waiver "Accepted Claims" is described below:

FY12 FY13 FY14 FY15 FY16 FY17 Est FY18 Proj
Adult Waiver Claims (millions) 553.3 595.3 658.3 710.6 747.5 756.5 764.1
Change from Prior Year 42.0 63.0 52.3 36.9 9.0 7.6
Unduplicated Persons 17,607 18,621 19,509 20,511 20,772 21,022 21,232
Change from Prior Year 1014 888 1002 261 250 210
Source: Accepted Claims Reports (Mobius)

DD CILA Waiver Services

A subset of Adult Waiver services, spending for CILA services, including residential, day and ISSA is described below:

FY12 FY13 FY14 FY15 FY16 FY17 Est FY18 Proj
DD CILA Services Billings (millions) 462.1 498.9 546.9 593.5 619.8 627.3 633.5
Change from Prior Year 36.8 48.0 46.6 26.3 7.5 6.3
Unduplicated CILA Persons 9,709 10,149 10,650 11,438 11,655 11,795 11913.1
Change from Prior Year 440 501 788 217 140 118
Source: Billing System - Client Type C

Implementation Plan Updates and Amendments

The original Implementation Plan was completed and filed with the Court with input from the Monitor, Plaintiffs, and Intervenors. Subsequent annual updates are completed each year. The original Implementation Plan and the subsequent update are posted on the DHS website at: http://www.dhs.state.il.us/page.aspx?item=69861.