- Do you work for the Illinois Division of Developmental Disabilities (DDD)?
No, I work for an organization called The Council on Quality and Leadership - or CQL for short.
- Who is CQL? How is CQL affiliated with DDD?
CQL is a not-for-profit organization that works with organizations all over the country, to assure that they are providing safe and quality supports to people with disabilities. Our office is in Maryland, but people who work for CQL live in many different states. Some live here in Illinois. Information about CQL can be found at the website: www.thecouncil.org.
CQL has been contracted (hired) by Illinois' Division of Developmental Disabilities (DDD) to do this work. It is our job to talk with people affected by the Ligas Decree (that is, those who live in ICFs/DD), to see if they want to learn more about living options (places to live) available to them.
- Do CQL interviewers work for provider organizations in Illinois?
Most CQL interviewers (people who will meet with you) live in a nearby state, but not in Illinois. We think this is important, so you can feel assured that any information you share, or decisions you make, are kept private and confidential. There are a few interviewers who live here in Illinois, but they do not work for a provider organization, and they too, are committed to keep any information you share confidential.
- How can I verify that you are affiliated with DDD?
If you'd like to make sure we are who we say we are, you can call (or we can ask him to call you, if that's what you prefer):
- Jim Eddings at DDD. His phone number is: (217) 557-6335.
- I have some questions about my family member's current services, who do I talk to?
That depends on your question. It's usually best to start with the organization that provides support to your family member, perhaps a staff person or supervisor.
If you'd like to talk with someone at DDD about your family member's current services, Jim Eddings can help you, or direct you to the right person. His number is (217) 557-6335.
- If we meet, where will the meeting take place?
We can meet at your home, at your family member's home, or at another local place (e.g., a coffee shop, restaurant, library). You and your family member can choose which works best. If you'd like, we could bring or buy breakfast or lunch for [individual].
- How long will the meeting take?
Most meetings will last 1 to 11/2 hours. We are happy to spend more time, if needed. And it's possible that it could take less time, if you'd like to review some of the materials ahead of time.
- Who from CQL or DDD will be meeting with us?
No one from DDD will be present at the meeting. I [or name other person] will be the person from CQL meeting with you. If needed, we might also bring an interpreter.
- Who should/can come to the meeting?
We would definitely like you (as guardian) and your family member to attend. If there is another close family member or advocate who you would like to attend, they are also welcome. We are happy to give you extra copies of the materials, if there are others you'd like to involve in your decisions.
- I/my family member needs an interpreter (non-English, sign language, etc.) or need materials in an accessible format. Will these be available?
Yes. We have interviewers on staff who speak English and Spanish. If another language is required, we will have an interpreter available at the meeting. Interpreters will also be available for individuals who use sign language or oral interpretation.
Our written materials will be available in several languages, large print, and Braille (if necessary). Our video will be close-captioned.
- What happens during the meeting?
The interview, or meeting, will likely last between 60 - 90 minutes. It will include:
- Introductions & Initial Questions - We'll start out with introductions, and then we have a few simple questions to get us started. This is also a good time for you and your family member to ask any questions.
- Personal Outcomes Screening Tool (POST)© - Next, we have a brief interview tool that helps your family member identify the things that are important to him/her right now, and how these things are going right now.
- Living Options Materials - Next, we will review different brochures, fact sheets, and a presentation about different living options. This is another opportunity for you to ask questions. This may take more or less time, depending on the number of questions you have, and whether you have reviewed any of the materials prior to our meeting.
- Form 1238A (revised) - This form will be completed if you and your family member decide, at the meeting that your family member definitely wants to: 1) continue living in an ICF/DD; or 2) move to another living option, using HCBS waiver funding.
- PUNS (Prioritization of Urgency of Need for Services) - This form will be completed if you and your family member decide you want a different living option, or if you decide you want to meet with a service coordinator to look at specific options available to you.
- What happens after the meeting?
- If you decide you want to stay where you're at - You will complete a form (Form 1238A), indicating that you/your family member want to continue living in the ICF/DD where s/he currently resides. This form will be submitted to DDD, and no further action is required. However, if you and/or your family member change your mind, you are free to re-start the process of exploring other living options. In that case, you should contact Jim Eddings at DDD at (217) 557-6335.
- If you're unsure - You may take all the time you need to make a decision. In the meantime, your family member will continue living in the ICF/DD where s/he currently resides.
- If you decide you'd like to look at other living options - You will complete the PUNS, and then be connected with a service coordinator, who will support you with specific information and visits to living options (or ones similar to those) available to your family member.
- If you are certain that you'd like your family member to move to another living option - You will complete the PUNS and Form 1238A. You will be connected with a service coordinator who will support you with specific information, visits to living options available to you, and assist you by developing a service plan to meet the needs of your family member.
- Do I have to make a decision right away? How long do I have to make a decision?
No, you may take time to think about it. Please refer to the timelines in Question 21 for guidance.
- What happens if I don't meet with you?
If you choose not to meet with us, we will simply notify the State DDD that, at this time, you are not interested in pursuing other living options. At any time, you may choose to change your mind - or declare your preference for your family member to remain in his or her ICF/DD.