Children with Special Health Care Needs
Reproductive & Early Childhood Services
Division of Community Health & Prevention
Illinois Department of Human Services

Program Description


The target population served are Illinois children ages 0-18 who have impairments that are expected to be chronic; involve multiple physical defects, disabilities or handicaps; are amenable to treatment; have a need for long-term, highly specialized medical care; and have life expectancy sufficient to realize benefit from the treatment.


The program's goal is to assure community-based, family-centered and culturally sensitive provision of comprehensive care coordination services for all CSHCN and their families.


Core Program services include comprehensive evaluation, specialty medical care, care coordination, and related habilitative services appropriate to the child's needs and financial support for those families who are financially eligible. The program serves children with impairments associated with the following categories: orthopedic, nervous system, cardiovascular, craniofacial deformities, hearing, organic speech, eye and urinary system, cystic fibrosis, hemophilia, and inborn errors of metabolism.

Delivery Method:

The Title V program for Children with Special Health Care Needs (CSHCN) is operated by the University of Illinois at Chicago's Division of Specialized Care for Children (DSCC). It serves approximately 23,000 children annually through the Core Program, the IDHFS Home Care Waiver Program, the SSI Disabled Children Program, and the Children's Habilitation Clinic.

The program provides care coordination services for approximately 20,000 children annually. Children receive diagnostic and care coordination services without regard to a financial means test.

Program Data

Performance Indicators SFY06 SFY07 SFY08 SFY09
Grant Amount (Numbers in 000's) $6,595.80 $6,630.10 $6,630.10 $6,630.10
Number of Grantees 13 13 13 13
Number Served 23,000 23,019 23,418 20,872

Program Effectiveness:

76.1 percent of Illinois families with CSHCN reported that the community-based services systems were organized so that they can use them easily.

60.6 percent of Illinois families with CSHCN ages 0 to 18 reported partnering in decision making at all levels and were satisfied with the services they receive.