Overview

Welcome to the Illinois Department of Human Services (IDHS) Division of Developmental Disabilities (DDD) Community Integrated Living Arrangement (CILA) Quality Scorecard! The CILA Quality Scorecard brings together information from IDHS's Division of Developmental Disabilities, Bureau of Accreditation, Licensure, and Certification (BALC), and Office of the Inspector General (OIG) to provide families and the general public with a view of where CILA services are provided, by whom, and how those providers are performing in key areas.

The Scorecard is meant to acquaint families and the general public about where and by whom services are provided, but it is not meant to be the sole source of information upon which families make the important decision about where to receive services. For that decision, we encourage families to work with the appropriate Independent Service Coordination (ISC) agency.

The User's Guide, which can be found on this page below the Scorecard, contains useful information about the Scorecard layout and how to navigate the Scorecard, as well as definitions of terms and additional context for certain data elements. If, while using the Scorecard, you have a question about the content or use, please refer to the User's Guide.

CILA Quality Scorecard

The Quality Scorecard contains an extensive amount of information and is best viewed on a widescreen monitor, if possible. To view the Scorecard on the full screen of your monitor, click the Full Screen button in the bottom right corner of the Scorecard.

In addition to the interactive dashboard format on this page, the Scorecard data is also available in a simpler HTML format, which may be easier to use with assistive technologies such as screen readers. The link to the data in that format is provided immediately below the dashboard.

The Scorecard contains information for the CILA providers and sites who were both authorized by the Division of Developmental Disabilities and licensed by the Bureau of Accreditation, Licensure, and Certification as of June 2019. The person counts for providers and sites reflect DDD authorization data as of the end of June 2019. The next update will be posted upon completion of the quarter ending September 30, 2019.

CILA Quality Scorecard Data (HTML table of all the data provided in the Scorecard above. It may be easier to use with assistive technologies such as screen readers.)

CILA Quality Scorecard User's Guide

The User's Guide is organized into two primary sections: 1.) Understanding the Layout and Using the CILA Quality Scorecard, and 2.) Definitions, Data Sources, and Data Context. The first section is about general layout, and functionality, with information about how to use the filters and the map. The second section includes detailed explanations of each data element included in the Scorecard. This includes the data source for the information and additional information that puts certain data elements into context (e.g., statewide averages, etc.).

Understanding the Layout and Using the CILA Quality Scorecard

Note on Usability: The Quality Scorecard contains an extensive amount of information, and as such it is best viewed on a widescreen monitor, if possible. To view the Scorecard on the full screen of your monitor, click the Full Screen button in the bottom right corner of the Scorecard.

Provider-Level vs. Site-Level Information

The CILA Quality Scorecard allows you to view information at both the provider agency level and at the site level. For example, there could be a business called Provider A, which operates 30 different CILA sites across Illinois. In the Quality Scorecard, you could view information about Provider A as a business (how many CILA sites it operates, how many people overall it serves in CILA settings, etc.) as well as information about the each of the CILA sites that provider A operates (how many people are served in each specific CILA, whether it is co-ed or serves only males or only females, etc.).

  • The provider-level information is contained in the table in the top half of the Scorecard, titled Offerings, Capacity, Safety & Quality. In that table, there is a row for each provider of CILA services. Providers are initially sorted in alphabetical order, and you can sort providers by other criteria by clicking on the different column headings. In this table, you can also click on a provider name to open the webpage that includes redacted summaries for OIG substantiated reports, and other related information (such as key dates and a link to the DDD-approved written response, if one exists) that have been issued since December of 2017. In addition, you can hover your mouse over the fields on the right side of the table to load a "tooltip" (popup box) with administration about that provider.
  • The site-level information is contained in the table in the bottom half of the Scorecard, titled CILA Site Information. In that table, each row is a CILA site (sorted by Agency name).

Filtering

When you initially open the CILA Quality Scorecard, it is populated with information for every provider and every CILA site in Illinois. You can view all of this information at once, scrolling through the tables and comparing all providers, or, you can opt to filter providers by criteria of your choosing.

  • Geographically, you can filter by County or City, or search by Zip Code. After filtering by one of these criteria, only the providers who serve that area will display. Any count that displays for the provider (total CILA sites, persons served, etc.) after one of these filters has been applied is the count for that specific geographic area. For example, if you select Cook County, the persons served count for a provider will be the number of people that provider serves in Cook County CILAs only.
  • You can also select a single provider in the Agency Name dropdown list to view information for only that provider. Note that any filters you have already selected will affect the providers that populate in the Agency Name dropdown list. For example, if you've already selected Champaign in the County dropdown list, only providers who offer CILA services in Champaign County will show up in the Agency Name dropdown list.
  • Finally, you can filter providers and sites by the behavioral and physical health characteristics of the individuals served, by using the Avg Health Risk and Avg Maladaptive Behavior Index dropdowns. Each of these dropdowns has categories of Lowest, Low, Moderate, High, and Highest. Based on information IDHS collects from objective assessments, the Scorecard calculates which category each provider and site falls into.

The Map

In addition to the provider-level Offerings, Capacity, Safety & Quality table and the site-level CILA Site Information table, there is also an interactive map under the heading CILA Sites by Zip Code. This map dynamically updates based on the providers and sites you have selected to display using the filters. When you initially open the Scorecard, every zip code with a CILA site is highlighted, with a number showing the number of CILA sites within that zip code. As you update which providers and sites display by using the filters, the map dynamically updates to show only the zip codes and counts for your selections.

In addition, the map itself can act as a filter. When you select a zip code or group of zip codes on the map, the provider-level and site-level tables will update to show only provider and CILA site information relative to those zip codes. As with the filters, any counts that display in those tables (persons served, etc.) will only be for the zip codes selected, not for the entire provider.

Definitions, Data Sources, and Data Context

This section provides definitions, data sources, and additional context for every data element contained in the Scorecard. It is organized in the same way the Scorecard is organized, with a table of definitions for the Offerings, Capacity, Safety & Quality section of the Scorecard and a table of definitions for the CILA Site Information section of the Scorecard.

Offerings, Capacity, Safety & Quality

Data Element Definition / Background Data Source Data Context
Agency Name

This is the name of the business/organization providing CILA services.

The agency name also serves as a link. Click on the agency name to open the webpage that includes redacted summaries for OIG substantiated reports, and other related information, that have been issued since December of 2017.

Bureau of Accreditation, Licensure and Certification (BALC) n/a
Last BALC Survey This is the date of the last BALC survey of a provider. CILA providers are surveyed for licensure purposes by the Department of Human Services, Bureau of Accreditation, Licensure, and Certification (BALC). Providers scoring 93% are higher are reviewed once every two years, while all other providers are reviewed yearly. BALC n/a
Self-Reports to OIG? The Office of the Inspector General (OIG) investigates reports of abuse, neglect, and exploitation at many care settings, including CILAs. Referrals to OIG either come from a representative of an agency (a self-report) or from someone who is not a representative of an agency (a complaint). This value shows whether, in the past 12 months, the agency has self-reported to OIG. OIG For the authorized and licensed providers of CILA services on 6/30/19:
  • 134 (65%) had self-reported to OIG in the past 12 months
  • 72 (35%) had not self-reported to OIG in the past 12 months
Complaints to OIG? The Office of the Inspector General (OIG) investigates reports of abuse, neglect, and exploitation at many care settings, including CILAs. Referrals to OIG either come from a representative of an agency (a self-report) or from someone who is not a representative of an agency (a complaint). This value shows whether, in the past 12 months, OIG has received a complaint from an individual who is not a representative of the agency. OIG For the authorized and licensed providers of CILA services on 6/30/19:
  • 126 (61%) had external complaints to OIG in the past 12 months
  • 80 (39%) did not have external complaints to OIG in the past 12 months
OIG Self-Report to Complaint Ratio The Office of the Inspector General (OIG) investigates reports of abuse, neglect, and exploitation at many care settings, including CILAs. Referrals to OIG either come from a representative of an agency (a self-report) or from someone who is not a representative of an agency (a complaint). This value only populates for agencies with both self-reports and complaints. For those agencies, this number shows the ratio of self-reports to complaints or, in other words, the ratio of referrals that come from agency representatives versus those that come from individuals not representing the agency. For example, a value of "4" in this column would indicate that a provider reports on itself four times for every one time there is an external complaint to OIG. OIG For the authorized and licensed providers of CILA services on 6/30/19: 
  • 100 (49%) had both self-reports and complaints to OIG in the past 12 months.
Most Recent BALC Score CILA providers are surveyed for licensure purposes by the Department of Human Services, Bureau of Accreditation, Licensure, and Certification (BALC). A score of 100% indicates the provider is in full or acceptable compliance; 93-99.99% is considered to be in acceptable standing; 80-92.99% results in a written "Notice of Violations", may result in higher sanctions, and requires an acceptable plan of corrections; 70-79.99% indicates the agency is minimally compliant and will be on probation for up to 90 days; 69% and below results in admission of new individuals being disallowed, a corrective action plan being required, and additional monitoring by the Division of Developmental Disabilities. Providers scoring 93% or higher are reviewed once every three years, while all other providers are reviewed yearly. BALC For the authorized and licensed providers of CILA services on 6/30/19, as of their most recent BALC survey:
  • 9 (4%) providers scored 100%
  • 135 (66%) scored 93-99.99%
  • 43 (21%) scored 80-92.99%
  • 13 (6%) scored 70-79.99%%
  • 5 (2%) scored 69.99% or lower
Total CILA Sites This is the total number of different sites where a provider delivered CILA services at the time of Scorecard publication. Division of Developmental Disabilities (DDD) For the authorized and licensed providers of CILA services on 6/30/19:
  • 3 (1%) operate over 100 CILA sites
  • 8 (4%) operate 50-100 CILA sites 
  • 22 (11%) operate 20-49 CILA sites
  • 49 (24%) operate 10-19 CILA sites
  • 38 (18%) operate 5-9 CILA sites
  • 61 (30%) operate 2-4 CILA sites
  • 25 (12%) operate a single CILA site
Persons Served This is the total number of persons receiving CILA services by the provider at the time of Scorecard publication. DDD For the authorized and licensed providers of CILA services on 6/30/19: 
  • 9 (4%) served over 200 people
  • 18 (9%) served 100-199 people
  • 47 (23%) served 50-99 people
  • 36 (17%) served 25-49 people
  • 58 (28%) served 10-24 people
  • 30 (15%) served 5-9 people
  • 8 (4%) served fewer than 5 people
Persons in Family Care This is the total number of individuals receiving CILA services by the provider, with supports provided in the family home. DDD Of the authorized and licensed providers of CILA services on 6/30/19, 65 (32%) provided services in a family care setting.
Persons in Foster Care (Host Family)

This is the total number of individuals receiving CILA services by the provider, with individuals living with a host family who are unrelated to the individual with a developmental disability and who are under contract with the provider to provide these services. No more than two individuals with developmental disabilities may reside with any single host family. The two support models are:

  • Traditional care: the full-time residence of the paid care givers. The paid care givers own, lease or rent the residence.
  • Shared living: may house either full or part-time paid care givers in which individuals other than shift staff employees provide more than 50% of the residential coverage. The individuals, care givers or provider agency own, lease or rent the residence.

The difference between traditional care and shared living models is shift employees routinely share supervision, care and training responsibilities with the host family care givers in the shared living model.

DDD Of the authorized and licensed providers of CILA services on 6/30/19, 17 (8%) provided services in a foster care setting.
Substantiated OIG Investigations When OIG conducts an investigation, it determines whether an allegation is substantiated, unsubstantiated, or unfounded. A finding of "substantiated" means there is a preponderance of evidence to support the allegation. Office of the Inspector General (OIG) Of the authorized and licensed providers of CILA services on 6/30/19, 63 (31%) had at least one substantiated OIG finding in the previous 12 months. 22 providers had multiple substantiated OIG investigations in that time period; 13 providers had 3+; 8 had 4+; and 3 had 5+.

Note that, in addition to the information that displays directly in the table, you can view additional provider information by hovering the mouse over the row for a provider (for technical reasons, this only works when you do so over the rightmost columns, beginning with "Most Recent BALC Score"). When you do this, the following additional information displays in a "ToolTip" (dynamic pop-up) for the applicable provider:

  • Corporate headquarters and phone number (Note: the corporate headquarters address does not display if the corporate headquarters is also a site of service delivery.)
  • Year Licensed for CILA Services - The year the provider was licensed as a provider of CILA services by IDHS's Bureau of Accreditation, Licensure, and Certification
  • Accredited? - Accreditation for providers is optional. This field is A Yes/No indicator of whether the provider has one of four IDHS-recognized national accreditation standards for community agencies: the Commission on Accreditation of Rehabilitation Facilities (CARF), the Joint Commission on Accreditation of Healthcare Organizations (JCAHO), The Council on Quality and Leadership (The Council), and the Council on Accreditation of Services for Families and Children (COA). 62 (29%) of 213 providers have one of these accreditations.

CILA Site Information

Data Element Definition Data Source Data Context
Agency Name This is the name of the agency that operates the specific CILA site. Bureau of
Accreditation,
Licensure and Certification (BALC)
n/a
Zip This is the zip code where the specific CILA site is located. BALC n/a
Persons Served

This is the number of persons receiving CILA services at the specific site at the time of Scorecard publication.


Note that, if this number is 1 or 2, it results in other fields ("CoEd?", "24 Hour Supports", "Avg Health Risk", "Avg Maladaptive Behavior Index", "Avg Personal Care Required")being suppressed.

Division of Developmental Disabilities (DDD)

CILA sites can serve no more than 8 individuals at a given time.

For CILA sites authorized and licensed as of 6/30/2019:

  • 25% served 1 person
  • 9% served 2 people
  • 10% served 3 people
  • 17% served 4 people
  • 9% served 5 people
  • 12% served 6 people
  • 8% served 7 people
  • 11% served 8 people
CoEd? This indicates whether, at the time of Scorecard publication, the CILA served both males and females, only males, or only females. DDD For CILA sites authorized and licensed as of 6/30/2019:
  • 34% serve 1 or 2 people and have this information suppressed
  • 27% male-only (3+)
  • 15% female-only (3+)
  • 24% were co-ed (3+)
CILA Site Control

Every site is either agency-controlled or individual-controlled (a personal residence where an agency provides services).


Note that, for independently-controlled sites, BALC does not collect the same information as for agency-controlled sites.

BALC For CILA sites authorized and licensed as of 6/30/2019:
  • 64% were agency-controlled
  • 36% were individual-controlled
Site Substantiated
OIG Investigations
When OIG conducts an investigation, it determines whether an allegation is substantiated, unsubstantiated, or unfounded. A finding of "substantiated" means there is a preponderance of evidence to support the allegation. OIG For CILA sites authorized and licensed as of 6/30/2019:
  • 4% had at least one substantiated OIG investigation in the previous year
  • Less than 1% had multiple substantiated OIG investigations in the previous year
Wheelchair Access? This field indicates, based on BALC's determination, whether a site can accommodate individuals that need wheelchair accessibility. BALC For CILA sites authorized and licensed as of 6/30/2019, 29% were designated by BALC as being able to accommodate individuals needing wheelchair accessibility.
24 Hour Supports?

This is a Yes/No indicator to show whether at least one person in the home was receiving 24-hour supports and services at the time of publication. These homes have on-site shift staff available during all times when participants are present. Staff provide both scheduled and unscheduled supports and services as needed by participants.


Note that if a site serves 1 or 2 people ("Persons Served" value = 1 or 2), this field will be suppressed and display as blank.

DDD For CILA sites authorized and licensed as of 6/30/2019:
  • 34% serve 1 or 2 people and have this information suppressed
  • 64% have 24-hour supports
  • 2% do not have 24-hour supports
Avg Health Risk

This value is based on the site-level average Health Risk Screening Tool (HRST) score. The Health Risk Screening Tool (HRST) is a web-based screening instrument designed to detect health destabilization early and prevent preventable illness, health related events and even death. It is a reliable, field-tested screening tool that consists of 22 rating items, divided into 5 health categories. Each of the 22 items consists of questions answered by the Rater. When fully answered the HRST assigns a numeric degree of health risk to the person called a Health Care Level (HCL). The scale ranges from 1 (low risk) to 6 (high risk). (More information on the HRST can be found at http://hrstonline.com/faq/.)


Note that if a site serves 1 or 2 people ("Persons Served" value = 1 or 2), this field will be suppressed and display as blank.

DDD
  • Lowest indicates a site-level average HRST of less than 1
  • Low indicates a site-level average HRST of 1-1.99.
  • Moderate indicates a site-level average HRST of 2-2.99.
  • High indicates a site-level average HRST of 3-3.99.
  • Highest indicates a sit level average HRST of 4 or higher (up to 6).
All averages are for individuals served at the site as of 6/30/2019.
Avg Maladaptive Behavior Index

This value is based on the site-level average Maladaptive Behavior Index (MBI) score. The Maladaptive Behavior Index is a scale used in identifying the overall need for care, supervision or training due to behaviors which interfere with a person's ability to adjust to particular situations. The scale ranges from 0 (low need) to -100 (high need).


Note that if a site serves 1 or 2 people ("Persons Served" value = 1 or 2), this field will be suppressed and display as blank.

DDD
  • Lowest indicates a site-level average MBI of 0 to -9.99.
  • Low indicates a site-level average MBI of -10 to -19.99
  • Moderate indicates a site-level average MBI of -20 to -29.99
  • High indicates a site-level average MBI of -30 to -39.99
  • Highest indicates a site-level average MBI -40 or lower (down to -100).
All averages are for individuals served at the site as of 6/30/2019.
Avg Personal Care Required

This value is based on the Inventory for Client and Agency Planning (ICAP), which is administered for each recipient of CILA services by a Qualified Intellectual Disability Professional (QIDP). The ICAP is a "comprehensive, structured instrument designed to assess the status, adaptive functioning, and service needs of clients" (Examiner's Manual, 1986).  The score ranges from 0 (highest need) to 100 (lowest need).


Note that if a site serves 1 or 2 people ("Persons Served" value = 1 or 2), this field will be suppressed and display as blank.

  • Least indicates a site-level average ICAP of 80 or higher (up to 100).
  • Moderate indicates a site-level average ICAP of 60-79.99.
  • Regular indicates a site-level average ICAP of 40-50.99.
  • High indicates a site-level average ICAP of 20-39.99.
  • Highest indicates a site-level average ICAP of 0-19.99.
All averages are for individuals served at the site as of 6/30/2019.