The first $2,000 received in a calendar year by an individual (or their spouse) for participating in a clinical trial involving testing of treatments for a rare disease or condition is exempt as income when determining eligibility for Family Health Plans.
The person participating in the clinical trial must be at least 19 years old. For the income to be exempt the clinical trial must:
- be reviewed and approved by an Institutional Review Board (IRB), and
- involve research and testing of treatment that targets a rare disease or condition.
Request documentation that the clinical trial meets the requirements listed above when a person reports that income is received as compensation for participating in a clinical trial involving a rare disease or condition.